I am trying to be still and wait, I am trying to let God take control. The past few nights I have slept maybe 3 hours the numbness in my legs is moving up to my thighs, and my hands is going to the elbows. I don’t know if this test I had on Tuesday aggravated it but I am done. I am done how annoyed it makes me because I have limits I am don’t how quick I get angry because the pain today is more then I can take and I have things I want to enjoy and be a part of. Prayers are greatly appreciated heard nothing about medicine being approved and nothing from the trial as to when we could possibly get started. I have big things I need to do this weekend and I want to be present and enjoy them. 💜🙏🏻

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