By The last part of this verse always gets me, it’s what I will always want my boys to remember about their mama, she kept the faith no matter what was thrown her way. It’s been a challenging 2 weeks, but I have had so many blessings in the mix I can’t help but see God’s hands. 2 weeks ago I woke up and my stomach was rock hard, fluid build up again. So the answer was to double the water pills to help the heart out. I lost 14 pounds of fluid in a day. For a week I was chained to my house from 7-2:15ish but they are working. Then a week and a half later sitting in the living room I felt like I ran a marathon and my heart rate was 136 while I was sitting. It was going on long enough that I told Brad if I pass out tell them this is what I felt like beforehand. After about 30 minutes it went away, the next day it happened 6 times, each time I was doing nothing because I am chained to my house (lol). So I made a dr’s appointment. My C02 is high which is indicating that air is being trapped in my lungs, and they are ordering a ct scan. Apparently after Covid things like this can happen after 6 months or so. Again I am reminded that Amyloidosis and Covid do no play nice with each other. I have an appointment to see Judge so he can look at my heart and see what all is Amyloidosis and what maybe from the Covid I had in January. Also we can get a look at the medicine I am on and see since I am past the 6 month mark if it is working to stabilize the gene. So many flowers planted during this walk! We had a webinar on Saturday for Amyloidosis and it was said that the trial should be at MUSC within days, so that will be awesome! Brad got SOME help at the store so hopefully wouldn’t be an issue with him getting me down to MUSC. I was also part of an advisory board with a pharmaceutical company that has blown me away. They currently have a drug that is in the last trial phase but still about 2 years out from getting full FDA approval but the help they have extended is mind blowing! I got an email today that they can make some introductions for me so I can get the treatment that I need. Because we know the insurance has denied the silencer, and while stabilizing is good, the silencer is best and what is recommended with my gene mutation. God has placed me in the right places, and I am so thankful. I wish I could say I fully embrace this journey, I have my struggles and my days. Friday night I was so exhausted and I had that heart marathon thing again, and Brad said something about God, and I told him to tell God to fix this heart because I can’t do this. Not a glamorous moment for me, but a real one. So thankful that God brought Brad and I together back in 1996 for this moment, so thankful that 3 years ago God brought Brad back to Him and the church for this moment, so that when I fall Brad is there to hold me up. But this verse, fight the good fight, finish the race, keep the faith. When things get to bad for me I say this in my head, when I stumble, when I can’t drive distances anymore, when I feel like I ran a marathon, keep the faith. Remember who God is, He never changes, regardless of what my body is doing. Praying that you too, remember this verse, we are all just walking each other home……
