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This verse couldn’t be more true! I know I am sitting here typing this because of praying friends, friends who drove up to visit, friends who dropped of sweet flowers and a fly swatter to hit Satan with, friends who texted, and friends who sat with me in the dark but refused to let me …
Refining
These past 2 weeks have been hard, a hard I am really struggling with. Sunday at church people could see my hard, and that bothers me. I was struggling to breath and still am. I am holding more fluid then I need to and it is backing into my lungs which is causing me to …
Praying for the light
I am in a dark place, I know it, but yet I feel myself unable to crawl out. I feel like our family keeps getting belted with things and it has become too much. I hear the lies from Satan, I know they are from him, yet I find myself finding truth in them. I …
Refine me
I am being refined, each trial, each setback God is showing me where I am drawing the lines in the sand, God is showing me how I am still not surrendering. Last week was hard, all week I was on new water pills and lost about 42 pounds of fluid. I cried to Brad that …
Make me willing….
God is constantly showing me areas where I lack faith, trust, and willingness. He is refining me as I continue to put Him on a time line. 2 weeks ago we had some precious friends come over and pray over us, that was Sunday night, Monday I expect to wake up and jump out of …
Use me God.
I have had this cane for almost a year, for almost a year I have looked at this cane, and every time it made me angry. As pretty as it is, it made me angry. If I used it, I felt like I was “giving in” to Amyloidosis. I have no idea where this thought …
Learning
Sunday night was a low for me, I felt angry, then shame, and then even embarrassed as though my will enough would make my legs work better. It was a roller coaster of emotions and like I stated in my video (video was made Sunday night, its long but on here) I came in the …
Rare Disease Day
Today is rare disease day. ATTR (Amyloidosis) right now is still considered rare although more and more are being discovered and it may not stay that way. What a relief that would be, that would mean more treatment and research being done, and maybe a cure to be had. I inherited Amyloidosis from my dad, …
Whirlwind
Yesterday I felt defeated, I felt pressed on every side. I was told to lose 20 pounds of fluid, and I did. Homebound but I did. Then my heart went crazy. I would be sitting here and my heart rate was 136, and my heart was fluttering like I had 5 energy drinks. Wednesday night …
Not Shaken
Not shaken keeps coming up, coming up in our Tuesday night Bible study, coming up in songs that I have listened to for months and now that is all I hear. In my daily devotionals, it seems to be everywhere. This week has been difficult, and once again I found myself at a place accepting …