Refined Through The Fire

I have been sitting here staring at my boys, how do I tell them, how do I tell them that we are in for a fight, how can I protect their little hearts, and then a small voice reminds me its not me that can protect them but Jesus. We had out Bible study today, …

Support, he says you will need support to lean on, its a rough road, but a road that has been traveled. He also said that these treatments were not available when my dad was alive. Paul is one of my favorite people in the Bible, (well besides Ruth because her faith amazes me) but to …

The webinar went great. There are a lot of drug treatments out that can extend life longer, I really need Jesus to get the fate of my dad out of my head. I can not do it on my own. I also talked to Dr. Judge and instead of June he is going to see …

Tonight was our study, and I love how over the past few weeks I can see God’s hand. Tonight the lesson was on healing and miracles and praying. Each week has a lesson and most times one lesson takes us 2-3 weeks to cover it all, so God knew all along that in the moment, …

I had genetics counseling yesterday, and it was an eye opening experience. We talked about how there is HOPE, there are so many more treatments now then when my dad was sick. She gave a good explanation of what Amybolyd is: we all produce proteins on our body, with me my protein is sticky and …

We had out Bible study last night, I was going to come out and say what has been going on, I felt like God was telling me to let it out, but I couldn’t….saying it out loud makes it real, and I can’t take it back once it is said. And now I feel awful …

If I am being honest, I keep hoping this is just a test of my faith. That if I get to a point of 100% surrender, a point of 100% trust I won’t really have to walk down the Amyloidosis path…..but then reality sets in. I know thats not who My God is, so why …