Update: I heard from Whitney from the specialty pharmacy that will do my meds, she is awesome! She is submitting to the insurance company today. Said because of the price it usually gets denied and in that case they do a urgent appeal. I need all prayer warriors to pray but goes through the first …
Wondering….
“Hear my cry, O God; listen to my prayer. From the ends of the earth I call to you, I call as my heart grows faint; lead me to the rock that is higher than I.-Psalms 61:1-2 It’s another sleepless night, between my mind and the pain in my legs that I just want to …
Appointment time
What a wonderful God we serve! The past few days have been rough, little sleep and just pain in my legs and hands, Saturday I swelled up so bad I though I was going to burst, and that night sleep just wouldn’t stay. Sunday was church, and honestly I just wanted to crawl in my …
Changing…
I had my appointment with the nutritionist yesterday, and it was very informative. I said to Michelle it’s like I am going to battle, this is no longer a choice of if I want to be overweight and just accept my body or not, but do I want to live better, have a fighting chance. …
Letting it out
Last night was the first night since this whole Amyloidosis journey started that I cried in front of Brad and told him I was angry. His response, why? I think if we were not sitting at the table I might have punched him, lol! He has a peace with it, and is ready to walk …
Next steps
I met with the neurologist today, and looks like we will be heading down to Charleston again soon for a nerve study so we have a base line of the neuropathy. FAP is what I am diagnosed with Familia Amyloidosis Polyneuropathy. She wants to send her notes to Dr. Judge so they both can come …
Thankfulness in the storms
Tomorrow is Father’s Day, and while I am an Amazon girl through and through there are some things you just need to see. The boys and I went to Hobby Lobby and Walmart, and I feel like death. My legs in walmart I was almost in tears I could barely feel them, and yet they …
Thoughts…
Monday is the neurologist appointment, and my gosh they have called about 4 times to get me ready for it. Today was rough for my boys. The feeling in my legs comes and goes, and today I was more unstable then I have been and Bradley who is always so in tune with me was …
Lost…
Today was rough all the way around, between the swelling, and the numbness and pain, and dropping things more then I want to, and the mind games that are going on in my head. I was short with my kids, with Brad, and I just crawled into my little cave and wanted to shut the …
Rocks
The past three days have been rough. It started Sunday morning with the fluttering of my heart, and just overly tired. When our church building opened back up our pastor Matt said that we should have 10 rocks on our porch as a reminder of the 10 weeks when we were not allowed to gather …