I love how God met me yesterday to lift me up when I was about to sink! I have these purplish blotches on my left foot, and yesterday I noticed it’s now on my right foot. My dad had purple blotches all over, I don’t know the medical term for it but it has to …
Trusting
I know God has a plan, and there is a reason my appointment is out so long, and no treatment has begun yet, I just have to trust that plan, Lord I am trying! The past few days have been rough, I am swelling up, where water pills aren’t doing too much to help with …
Calm in the storm
It’s been a crazy few days with lots of emotions. My appointment with Dr. Judge is June 30th where we will go over the rest of the results see what my next steps will be. They are so backed up as MUSC was closed for inhouse appointments since March and now trying to get everyone …
Results
Some results are in, and some will be discussed more in depth at the end of the month at another appointment thankfully we can do it via virtual so I wont have to travel right now to Charleston. There is no Amyloid in my heart right now, but my heart is in congestive heart failure …
Made it
Only 2 sticks for the IV. The second one he was like I don’t know if I am in or now your veins twist, he said it was tense then it loosened up I guess you took a deep breath, no I praised God for that stick before I knew it was good and He …
What is Amyloidosis?
What is Amyloidosis? In my non medical terms, everybody’s body makes protein, and when you have the HTTR gene the body makes the protein but it doesn’t fold correctly and it makes an Amyloid which is a long sticky sheeth
He knows my name
By this time tomorrow the scan will be done, I talked to Dr. Judge today and he said I should have the results Wednesday and that I wouldn’t need to go back down to get the results he can call me with them or do a video/telehealth call. I have the weirdest feelings, I have …
Supportive Husband
It seems as the closer we get to the scan day the more my body wants to revolt to remind me that it’s still there, its still not working the way it’s supposed to. I just got off the phone with MUSC on my portion of the scan, and I guess they just think people …
Toss my net
The past few days have been rough, with my body just swelling to levels of complete and utter discomfort, feelings of being alone, and also withdrawing because it takes too much energy to be the Faye people know. This time in a week I will be in Charleston having the scan, I am unsure what …
Speak Lord
I am loving Sunday’s, my prayer was the same again that God speak loud and clear that I know the message is just for me. He did. It’s frustrating the past few days I have been off, swelling for no reason, fatigued, and my heart just can feel it and that feeling can be so …